Patients & Families Resources
The Epilepsy Foundation of Michigan is pleased to partner with the Michigan Department of Health and Human Services (MDHHS) Children’s Special Health Care Services (CSHCS) Division on the Michigan Pediatric Epilepsy Project. Since 2010 this project has focused on increasing access to quality health care for children and youth with epilepsy (CYE) especially those in rural and underserved areas.
Seizure Action Plan
Seizure Action Plans can help you organize your seizure information and have it available when and where you need it. A prepared plan can help you know what to do to prevent an emergency or tell others what to do in emergency situations. You can also adapt these plans to different situations in your life.
Transition Planning Guidebook
This workbook provides tips, tools, and strategies to help you in your planning.
Becoming an Adult
This video shows and describes ways for young people to be more involved in their health care.
Transition Resources for Youth with Disabilities
Helpful list of resources for youth with disabilities.
Got Transition
Comprehensive tools, resources, and FAQs to help guide your transition.
Meet Me Document
This tool can be used with pediatric or adult patients.
SHARE Brochure
The Agency for Healthcare Research and Quality created the SHARE approach to describe the provider’s role in Shared Decision Making.
Patient and Family Supports
Call & Connect Network
Weekly discussion groups provide participants an opportunity to share their experiences and ideas to help each other manage this challenging condition.
Family Center
The Family Center offers emotional support, information, and connections to community-based resources to families of children and youth with special health care needs.
Apps for Children or Youth with Epilepsy
List of beneficial apps for children and youth with epilepsy.
Child Neurology Foundation
Helpful website for community and support.