Participate in Research
Participating in epilepsy research has the potential to not only improve your own condition but also help others by increasing our understanding of epilepsy, developing new treatments, and possibly even preventing epilepsy. In some cases, participating in clinical trials and other research studies involves certain risks, so be sure to discuss these risks and possible benefits with your doctor before enrolling in any research study. For additional information on clinical trials and other research in which you can participate, visit the Epilepsy Foundation of America’s Participate in Epilepsy Research page.
Research Studies and Clinical Trials currently recruiting in Michigan
(note: this list is not comprehensive)
X-TOLE2/X-TOLE3, or X-ACKT Studies – For those living with either focal-onset seizures (FOS) or primary generalized tonic-clonic seizures (PGTCS), you may be eligible for a clinical trial that may help reduce the frequency of seizures. If you’ve been diagnosed with epilepsy, you may be eligible to participate in the X-TOLE2/X-TOLE3, or X-ACKT studies.
Human Epilepsy Project – a five-year, prospective, observational study whose primary goal is to identify clinical characteristics and biomarkers predictive of disease outcome, progression, and treatment response in participants with newly treated focal epilepsy; University of Michigan is a study site; for more information, contact Julie Konkle, BSN, RN, CCRP, Clinical Research Project Manager (734-936-8036).
“Consciousness”: Insights from Patients and Caregivers – a research study being conducted by investigators from Washington University in St. Louis. The purpose of this study is to better understand how patients with epilepsy and their caregivers interpret the medical term “consciousness” in the English language in the context of seizures.
Use your epilepsy journey to drive research forward
Empowering Epilepsy Research & Development
Join the movement to revolutionize epilepsy care with EmpowER&D™, the Epilepsy Foundation’s new secure online platform that empowers people with epilepsy to share their health data, drive discovery, and fuel life-changing research through a groundbreaking partnership with Iaso Ventures’ NeuroImpact Fund.
- Clinical Trials Currently Recruiting in Michigan
- CURE Epilepsy – organization committed to funding epilepsy research
- Epilepsy Foundation’s Clinical Trials Portal
- Managing Epilepsy Well Network – CDC-supported network that promotes epilepsy self-management research
- National Institute of Neurological Disorders and Stroke – supports epilepsy research
- PubMed – online database of peer-reviewed biomedical journal articles