Letter from the President- COVID-19

UPDATE: Epilepsy Foundation of Michigan's Response to COVID-19
In an effort to do our part to slow the spread of COVID-19, all Epilepsy Foundation of Michigan Team Members will be working from home as much as possible for at least the next 3 weeks.  Please be assured that we have capabilities for remote work and will continue to operate at full capacity.  We are asking that when you call our Here for You Helpline or a team member directly, to PLEASE leave a voicemail and we will call you back as soon as possible.  Please note that when we call you back, it may come up “NO CALL ID” or “Restricted”.  We want you to also be reassured that all phone-based programming will not experience any disruption.  This includes programs such as Learn & Share Conference Calls, Call & Connect Network and Project UPLIFT. 

As always, we are here for you and are deeply committed to keeping you connected to the best information, and each other!

Dear Epilepsy Community-

I wanted to reach out to you during this time of unrest about COVID-19.  As we make plans for our office operations and safety for our team, please know that we remain here for you as your trusted source of information, connection, and support.  Our Here for You Helpline will remain in operation even as our team begins to utilize the option to work offsite.  When calling the helpline, if your call is connected to our voicemail, we encourage everyone to please leave a message, and a team member will call you back as soon as possible. 

Here for You Helpline: (800) 377-6226

And out of an abundance of caution, we have decided to cancel our upcoming Open House originally scheduled for March 25th.  Below you will find some helpful information and resources on how to take reasonable precautions:

  • Talk to your healthcare provider about an extra supply of prescription medicines. If you can’t get the seizure medicine from your local pharmacy, look into a mail-order pharmacy. They often allow people to get a 2 or 3 month supply of medicine at once if prescribed by your provider.
  • Keep supplies of any over-the-counter (OTC) medicines you normally take. Do NOT take any new OTC medicines without talking to your provider.
  • Look into ways to have food and other things you need delivered to you.
  • Avoid crowds and being too close to other people.
  • Stay in touch with family, friends or someone who can check on you if needed.
  • Update your seizure action plan for what to do if there is a change in seizures and who to call.
  • For more information, visit https://www.epilepsy.com/article/2020/3/concerns-about-coronavirus 

At this time, it is not clear if people with epilepsy who do not have other underlying conditions are at higher risk.  People with epilepsy and other medical conditions may be at greater risk of developing more severe illness if they are exposed to COVID-19.  While most antiseizure drugs do not increase the risk of severe disease, some medicines act on the immune system – including ACTH, steroids or immunotherapies – and also increase the risk of more severe disease. These medicines may affect the body’s ability to fight infections.  Here is some helpful info from the Centers for Disease Control on how you can prevent the spread of COVID-19: https://www.cdc.gov/coronavirus/2019-ncov/community/index.html  

Always remember, we are here for you-

COVID-19 Resources

Epilepsy Foundation https://www.epilepsy.com/article/2020/3/concerns-about-coronavirus 
State of Michigan https://www.michigan.gov/coronavirus/0,9753,7-406-98160-520733--,00.html 
Centers for Disease Control https://www.cdc.gov/coronavirus/2019-nCoV/index.html 
World Health Organization https://www.who.int/emergencies/diseases/novel-coronavirus-2019/events-as-they-happen