Learn & Share Conference Calls
Education and Support are Just a Phone Call Away 
Two common needs among people with epilepsy and their families are the need for up-to-date information on epilepsy and support from others who are coping with the condition. Often, however, lack of transportation, fear of having a seizure, and other factors make it difficult to attend support groups and other community events. In response, Epilepsy Foundation of Michigan's Learn & Share Conference Calls provide an opportunity to both gain knowledge about epilepsy and related issues and share experiences to help others.

Interested individuals can participate in monthly Learn & Share Conference Calls by calling a phone number and entering the conference ID. You can learn more about each call and register online by clicking on "REGISTER" below. You can also contact Russ Derry (800-377-6226 ext. 1302) to register (recommended if you want to register for multiple calls).

While we'd prefer you to register, you can still participate if you haven't registered. Just call the following dial-in number at the start time for the call, and enter the conference ID when prompted*:

Dial-in #: 1-774-220-4000
Conference ID: 926764

* Long-distance charges may apply. Please check with your phone or cellular provider.

 
2018


Date Topic Speaker(s) Register
February 7
6:00 - 7:30 pm            
           
Epilepsy Surgery: Resection, Disconnection, and Ablation


Ellen Air, MD – neurosurgeon
Christopher Parres, MD – epileptologist
Henry Ford Comprehensive Epilepsy Program

LISTEN
March 7
6:00 - 7:00 pm


Public Benefits and Supports for Adults with Epilepsy


Thomas F. Kendziorski, Esq., Executive Director
The Arc of Oakland County, Inc.

LISTEN
April 4
6:00 - 7:30 pm  
Epilepsy in Older Adults


Rohit Marawar, MD – epileptologist
DMC Harper University Hospital

LISTEN
May 2
noon - 1:30 pm

The Nature of Epilepsy: from Causes to Consequences

John Bunka, DO – epileptologist
Bronson Neuroscience Center

LISTEN
June 6
6:00 - 7:30 pm


Transition Planning: Considerations for Teens with Epilepsy


Rajkumar Agarwal, MD – epileptologist
Children’s Hospital of Michigan
Jill Mazur Skornicka - parent mentor
Michigan Alliance for Families
Mitch and Janet Weisz - parents of young adult with epilepsy
Michelle Brunsch - parent of young adult with epilepsy

LISTEN
July 11
noon - 1:30 pm

Smartphone Apps and Online Tools for Managing Epilepsy
WEBINAR – preregister for details

John Hixson, MD – epileptologist
UCSF School of Medicine

WATCH
August 1
noon - 1:30 pm



Navigating Health Insurance




Amy Miilu – Health Insurance Resource Specialist
Department of Insurance and Financial Services

LISTEN
September 5
6:00 - 7:30 pm


Neuromodulation for Epilepsy: VNS, RNS, and Beyond


David Burdette, MD – epileptologist
Spectrum Health


REGISTER
October 3
noon - 1:30 pm



Sleeping Well with Epilepsy




Timothy Hoban, MD – pediatric epileptologist and sleep specialist
Michigan Medicine C.S. Mott Children’s Hospital

REGISTER
November 10

 Wellness & Epilepsy Conference

No Learn & Share Conference Call scheduled

 
December 5
6:00 - 7:30 pm


Childhood Epilepsy Syndromes: Diagnosis, Treatment, and Prognosis


Alexandra Shaw, MD – pediatric epileptologist
Beaumont Children’s Hospital


REGISTER






2017

Date Topic Speaker(s) Register
February 1

               
Pediatric Epilepsy Surgery Evaluation
                                           

Eishi Asano - MD, PhD - pediatric epileptologist
Amy Luat, MD - pediatric epileptologist
Children's Hospital of Michigan
LISTEN
March 1




Sudden Unexpected Death in Epilepsy (SUDEP)



Orrin Devinsky, MD - epileptologist
NYU Langone Comprehensive Epilepsy Center
Kellie Jankowski, GC-C - support & community program coordinator
SUDEP Institute, Epilepsy Foundation
LISTEN
April 5
 
Cannabis for Epilepsy

Gregory Barkley, MD - epileptologist
Henry Ford Comprehensive Epilepsy Center
LISTEN
May 3 


  
Accessing Appropriate Epilepsy Care



Linda Selwa, MD - epileptologist
University of Michigan Health System
Jane Turner, MD - pediatrician
Michigan Department of Health & Human Services
LISTEN
June 7



Management of Status Epilepticus



Donald Phillips, MD – pediatric epileptologist
Beaumont Children’s Hospital
Nikesh Ardeshna, MD – epileptologist
Beaumont Neurosciences
LISTEN
July 5



Strategies and Tools for Managing Cognitive Problems


Michael Wolff, PsyD, ABPdN – neuropsychologist
BRAINS
Amy Peterson – adult with epilepsy and parent of child with epilepsy
LISTEN
August 2
   
Seizure Types and Classifications

Erica Austin, DO - epileptologist
Traverse City, MI
LISTEN
October 4 


The Ketogenic Diet: It's Not Just for Kids Anymore

Jennifer Fillenworth, RD - clinical dietitian
Mercy Health Hauenstein Neurosciences

LISTEN
December 6         



Epilepsy and Relationships




Courtney L. Kowalczyk, MS – pediatric psychologist
Horizons Developmental Resource Center
Andrea Thomas, MA LLP – psychologist
Henry Ford Comprehensive Epilepsy Center

LISTEN



 2016

Date Topic Speaker(s) Register
February 3


                
Appropriate Treatment of Localization-related Epilepsy  
                                           
WEBINAR
Jason Schwalb, MD - neurosurgeon
Henry Ford Health System  


VIEW
March 2



Maximizing Independence with Epilepsy



Amber Vondra - transition coordinator
Disability Advocates of Kent County
Susan Woolner - patient support coordinator
Mercy Health Hauenstein Neurosciences
LISTEN
April 6
   
Epilepsy and the Immune System

Mitchel Williams, MD, PhD - pediatric neurologist Children's Hospital of Michigan LISTEN
May 4 
   
Complementary Approaches to Seizure Management Mohammad Poostizadeh, MD – epileptologist
Mercy Health Hauenstein Neurosciences
LISTEN
June 1

Epilepsy and Physical Health

Yanny Phillips, DO, PhD - epileptologist
Bronson Neuroscience Center
LISTEN
July 20

Understanding Social Security Disability Benefits Sharon Rossiter - Disability/Social Security Advocate
Disability Management
LISTEN
August 3
     
Epilepsy Management in Women and Girls

Basel Assaad, MD – epileptologist
Henry Ford Health System
LISTEN
September 7

Epilepsy Decisions: How to Make Informed Choices Rachel Fabris, MD – epileptologist
Spectrum Health
LISTEN
November 2               

    

                 
Diagnosis and Management of Psychogenic Nonepileptic Seizures



Nicholas Beimer, MD – epileptologist
Scott Winder, MD – psychiatrist
Elissa Patterson, PhD – health psychologist
Najda Robinson-Mayer, LMSW - clinical social worker
University of Michigan Health System
LISTEN



2015

Date Topic Speaker(s) Register
February 4

Diagnosis & Treatment of Pediatric Epilepsy Aimee Luat, MD - pediatric epileptologist
Children's Hospital of Michigan     
LISTEN
March 4
          
Stress Management & Relaxation Techniques Andrea Thomas, MA, LLP - psychologist
Henry Ford Health System
LISTEN
April 1
  
Residential Options for Adults with Epilepsy Linda Brown - Housing Resource Consultant
Community Housing Network
LISTEN
June 3    

EEG and the Epilepsy Monitoring Unit Judy Ahn Ewing, R. EEG/EP T., CNIM, CLTM   
Amer Aboukasm, MD - epileptologist
St. John Providence Health System
LISTEN
July 1

Epilepsy Self-Management Toya Malone, MD
Bronson Neuroscience Center
LISTEN
August 5         

Epilepsy in Adolescents Jules Constantinou, MD - pediatric epileptologist
Henry Ford Health System
LISTEN
September 2   
  
Cognitive Function & Epilepsy David Nyenhuis, PhD - neuropsychologist
Mercy Health Hauenstein Neurosciences
LISTEN
October 7
      
Vagus Nerve Stimulation for Epilepsy Temenuzhka Mihaylova MD, PhD – epileptologist
University of Michigan Health System
LISTEN
December 2

Neurological Conditions Associated with Epilepsy Ayman Haykal, MD – epileptologist
Spectrum Health
LISTEN



2014

Date Topic Speaker(s)  
February 12 Epilepsy and Sleep Linda Selwa, MD
University of Michigan Health System
LISTEN
March 5 Seizure Types: Implications for Diagnosis and Management Tyson Burghardt, MD
Michigan State University
LISTEN
April 2 Attention, Executive Function, and Epilepsy Christine Trask, PhD 
Rhode Island Hospital
LISTEN
May 7     Complementary Therapies for Epilepsy Gregory Barkley, MD
Henry Ford Health System
LISTEN
June 4      Mood Disorders and Epilepsy Adriana Tanner, MD
Mercy Health Hauenstein Neurosciences
LISTEN
July 9 Epilepsy Treatment: Recent and Future Advances Ayman Haykal, MD
Spectrum Health
LISTEN
September 3      The Ketogenic Diet and Other Dietary Therapies for Epilepsy Denise Potter, RD, CSP, CDE
C.S. Mott Children's Hospital
LISTEN
November 5 Epilepsy: Beyond the Nervous System Deepti Zutshi, MD
Wayne State University/Detroit Medical Center
LISTEN
December 3 Developmental Disabilities and Childhood Epilepsy Iqbal Allarakhia, MD
St. John Providence Health System
LISTEN



2013

Date Topic Speaker(s)  
February 6 Ask the Epileptologist Yvan Tran, MD
Hauenstein Neuroscience Center at St. Mary's Healthcare
LISTEN
April 3 Epilepsy: Understanding and Managing Risks David Burdette, MD
St. John Providence Health System
LISTEN
May 1 Neurostimulation-Based Therapies for Epilepsy Andrew Zillgitt, DO
Henry Ford Health System
LISTEN
June 5 Severe Childhood Epilepsy Syndromes Rani Singh, MD
University of Michigan C.S. Mott Children's Hospital
LISTEN
July 3 Medications for Epilepsy Toya Malone, MD
Bronson Neuroscience Center
LISTEN
August 7 Understanding Epilepsy at the Cellular Level Ruggero Serafini, MD, PhD
Detroit Medical Center/Wayne State University
LISTEN
September 4    Managing Challenging Behaviors in Kids With Epilepsy Brad Bridges, LMSW - BRAINS, LLP
Bea Castillo - Director, Camp Discovery
LISTEN
October 2 Epilepsy Diagnosis Nikesh Ardeshna, MD
Spectrum Health
LISTEN
December 4 Epilepsy Surgery: Risks and Benefits Oren Sagher, MD
University of Michigan Health System
LISTEN
















2012

Date Topic Speaker(s)  
February 1
 
Social Security Disability Benefits Karen Starr, MS, CRC, SDA, CBIS, ADR
STARR Disability Advocates, Inc
LISTEN
March 7
 
Speak Up, Speak Out:
Public Policy Advocacy for Epilepsy
Bill Murphy, Epilepsy Foundation
Arlene Gorelick, Epilepsy Foundation
LISTEN
April 4
 
Epilepsy Surgery Chaim Colen, MD, PhD
Beaumont Health System
LISTEN
May 2
 
Ask the Epileptologist Aashit Shah, MD
Detroit Medical Center/Wayne State University
LISTEN
July 11
 
Aging Well With Epilepsy Adriana Tanner, MD
St. Mary’s Health Care
LISTEN
August 1
 
Psychogenic Nonepileptic Seizures Andrea Thomas, MA, LLP
Henry Ford Health System
LISTEN
September 5
 
Transition Planning for Youth With Epilepsy Tricia Luker and Calvin Luker
The Respect ABILITY Law Center
LISTEN
October 3
 
Medications for Epilepsy Linda Selwa, MD
University of Michigan Health System
LISTEN
December 5
 
Assistive Technology for Cognition Michael Wolff, PsyD, ABPdN
BRAINS
LISTEN
















The following Learn & Share Conference Calls from 2011 were recorded:

Diagnostic Tools for Epilepsy: From EEG to PET
Simon Glynn, MD - University of Michigan Health System
LISTEN 

Epilepsy in the Teenage Years
A panel of young adults who dealt with epilepsy as teens
LISTEN